Great Wrap-Up to a Busy Few Weeks
Gardiner Lapham, Tom Frieden, MD, MPH (Director, CDC) and me
Gardiner (http://www.cureepilepsy.org/aboutCURE/bios/gardiner_lapham.asp) and I had a great meeting before I flew back home yesterday, with the CDC Director, Dr. Tom Frieden. It was a wonderful opportunity to discuss the Epilepsy IOM Report (http://www.iom.edu/Reports/2012/Epilepsy-Across-the-Spectrum.aspx) and talk about potential next steps to help patients and their families.
Finally back home, I had a great welcome back breakfast with Bogdan and long-time CURE friends Stacey Pigott and Kathy Dodd, the creative minds and boundless energy behind CURE’s popular Rock the Block event. (http://www.cureepilepsy.org/events/past.asp)
Kathy, Stacey, me and Bogdan catch up and brainstorm all things CURE.
I hope you all have a great weekend, and enjoy the extra hour of daylight on Sunday—hopefully that means this winter is soon behind us! If you happen to be in the Chicago area, stop by Northwestern University’s annual Dance Marathon this weekend. This year, the very popular student event benefits our friends at the Danny Did Foundation and the Evanston Community Foundation. More than 1,000 undergraduate students will dance for 30 hours from March 8 to 10! Check out all the details: http://www.nudm.org/
Wrap up this busy week at the movies. The exclusive Chicago screening of ON THE EDGE, Living With Epilepsy, a ground breaking documentary film by Louis Stanislaw will be shown this Sunday Noon at the Gene Siskel Theater. Feel the pain and love released by a deeply moving and illuminating documentary about the impact epilepsy has on its sufferers and their families,
We are desperate! Our son who is only 7 has 3 days of seizure meds left while his refill has been sitting in customs for weeks. He is taking Ospolot which we can only get from Europe. Please help us! He already has had probably irreversible damage from uncontrolled seizures for his short little life. He was improving slowly but we have hope! Please do not let him die or get brain damage because he couldn’t get his meds!