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48 Hours at a Mile High

October 5, 2012

It was a quick in and out to one of my very favorite states, but in 48 hours I managed to see quite a few folks in Colorado–friends, supporters, and colleagues. I shared a great dinner and long overdue  get-together with Kathy and Art Judd,  long-time friends and supporters of CURE and epilepsy research.

I also enjoyed my tour of the University of Denver Children’s hospital, with Amy Brooks-Kayal, MD and her colleague, Michael Handler, MD.  Poor Amy was jet-lagged, having just returned from the AES/ILAE Joint Workshop to Optimize Preclinical Epilepsy Therapy Discovery the day before, which CURE co-sponsored. But she was, not surprisingly, still  full of energy and ideas. She clearly has a fantastic facility and first-class team working to help kids with epilepsy.  Touring the hospital, I couldn’t help but be struck by the advances and improvements that have been made since we used to spend months and months in the hospital with Lauren many years back.

Not sure if you can read the signs outside their offices (click on the photos above), the King is In, the Queen is In—guess you can tell who thinks they run the show there!

In the electronic monitoring Unit (EMU), where kids’ brain waves are read when they are in for long-term EEG monitoring, I was pleasantly surprised to find one of our CURE magnets on the cabinet… and they didn’t even know I was stopping by!

At the Presidential Debate Wednesday night, I ran into Chicago friend and CURE supporter Martin Cabrera and Congressman Ed Perlmutter (D-CO).  The Congressman is a real champion for people with epilepsy and their families, and was an initial sponsor of the VA Centers of Excellence in Epilepsy.

with Martin Cabrera at the debate

with Congressman Perlmutter at the debate

On my way out of town yesterday, I caught up with Mark Stevenson, who I first met at the PAME meeting last June in Chicago.  His son Tyler passed away last year from SUDEP,  and he is determined to see that Tyler’s death was not in vain.  It was a privilege to spend some time with him and learn more about his personal story, his efforts, and his goals.

Gail Pundsack, Executive Director of Epilepsy Foundation Colorado joined us for a part of the meeting, and it was inspiring to learn about their good work providing services and programs to people across the state of Colorado.

with Mark Stevenson and Gail Pundsack

It’s always great to know how many good people are out there working for people with epilepsy.

And, look out, Boston! We’ll be back in town for a Benefit on Wednesday, November 28th at Fenway Park. Great news–Mika Brzezinski and Joe Scarborough from MSNBC’s Morning Joe will be joining us! Stay tuned for more details.

 

 

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