A Tribute to Teresa
I’ve been in North Carolina at the Democratic National Convention this week. For me personally, it’s been an exhilarating and totally exhausting week! Besides the events on the main stage, I saw many good, good friends and supporters of CURE, and made new contacts and connections for this cause. I’ll share some photos next week.
But in the meantime, I wanted to share this letter, below, that appeared in my inbox this morning. If you did not receive it, and are in the Bay Area, please consider joining the Walsh family, and our board member Evelyn Nussenbaum, in a celebration of Teresa’s life.
Dear Family and Friends,
As I write this, it has been 1 year, 9 months and 11 days since Teresa passed away. Teresa’s untimely and unexpected death came as a huge shock because I had no idea of the toll that epilepsy could ultimately take on her life. At the time, I did not know that SUDEP (sudden unexplained death in epilepsy) was even a possibility and now it is a reality I try to cope with every day. As the parent of a child struggling with a misunderstood disease, I did whatever I could to be there for her when the seizures occurred and to help her in the aftermath. I know now that there was no way to prepare for the seizure that ultimately took Teresa’s life. I want to help other families understand epilepsy, and the possibility of SUDEP, before it is too late for them.
This is why CURE: Citizens United for Research in Epilepsy is such an important organization to the Walsh Family. The people at CURE understand the frustration that I felt as a parent trying to help my child live a normal life with her epilepsy. They understand that drugs cannot always prevent seizures, that there is so much more to learn about epilepsy, and that a cure is possible with research and support from people like you and me. CURE’s mission is not only driven by the pressing need for scientific research and data, but by the painful struggle of families who suffer from epilepsy worldwide.
Don and I could not be more proud of our daughter, Erin, for organizing this event in honor of Teresa’s birthday. Teresa’s birthday was often celebrated as if it were a holiday in our family. Teresa loved to celebrate her birthday not just once but sometimes two or three times over. I can’t think of a better way to celebrate her life than by participating in Teresa’s Birthday Benefit and I am asking you to join me. Teresa’s Birthday Benefit will take place next Thursday, September 13 at 111 Minna Art Gallery in San Francisco. There will be live music, a great raffle and also a chance to get together and remember our special girl. The cost of admission is a $15 donation to CURE. If you can’t join us, I ask that you consider making a donation to the event in her honor. The money raised at this event will go 100% to CURE. Follow the link below for more information and to donate today.
I can’t thank you enough for the support that you have given to our family and to this cause. I hope to see you next week. Please let me or Erin know if you have any questions.
All my best,
If you cant be there in person, please consider making a donation in honor of an amazing family, and two outstanding sisters–Erin and Teresa.