Glad to have dodged the DC storms only to return to frigid temperatures in Chicago! Here are a few more photos from AES 2013. CURE’s footprint was evident throughout so many of the scientific presentations — it validated all the hard work on the part of so many throughout the year. Thanks to all of you reading this, who, in one way or another, contributed to our efforts!
I think this is –yikes — the 17th Annual American Epilepsy Society meeting in a row I have attended! The folks that were young investigators when I started, are now the esteemed, established investigators. There’s a new crop of young investigators who fill us all with hope. Some are our new grantees, and I’m looking forward to meeting them personally to congratulate and encourage them to continue to make epilepsy their career path. It’s fun to look around and wonder which of them will be the leaders in their time, and the ones to make meaningful breakthroughs.
The halls and sessions are filled with so many great individuals—many I’m honored to call friends–who have assisted CURE in so many ways over these years. Serving on our Scientific Advisory Boards, reviewing grants, helping spread the word to researchers and patients. It is a great community.
Over the next few days, I’ll share pictures with you from just a few of the sessions and meetings going on here in Washington DC–sometimes the greatest challenge is selecting which to attend. But, as always, some of the greatest conversations and networking opportunities happen in the corridors and on coffee breaks!
It’s so rewarding to see CURE-funded research so prevalent at this meeting in talks, special interest groups, poster sessions and beyond. We have planted so many seeds that have really taken off over these years. Many of you have enabled us to do this with your support. Please remember—and help us spread the word—-that we have an amazing matching grant that will double all donations received between now and December 31st up to $250,000 ! Now’s a critical time to give, and your support will continue to enable us to fund much more of the innovative research CURE is known for in 2014 and beyond!
This holiday, in particular, all of us at CURE reflect on each of you. We receive notes of appreciation all the time from many of you whose lives we touch. Notes like those below, just to highlight a few special ones.
“I work in medical research and I know how difficult it is to get a grant these days for our researchers. I can’t help think it is finally “our” time for the grants to help those with Epilepsy, whether it is for ourselves, our children, or our loved ones. Keep up the great work!”
“As the mother of a daughter with Epilepsy who is able to lead a full and active life, I am left devastated for the many who can’t. CURE is the reason for that hope. Thank you!!!”
“CURE is an inspiration to all of us “epilepsy moms,” encouraging us all to keep up the fight for our kids and all those affected with seizures. You are our “voice” that is being heard by so many…. Thank you for all that you have done and continue to do.”
Every day, and especially on Thanksgiving, we extend our heartfelt thanks for joining and supporting this cause. You bring us hope and strengthen our resolve that a world free of epilepsy is within our reach!
We wish you all a most wonderful Thanksgiving!!
Keeping up the momentum after last week’s great event in New York, I traveled to Houston and to Oklahoma City for more fantastic exposure for CURE and epilepsy research. I was thrilled to be there to hear Peter Crino, MD, PhD, present his exciting discoveries at the second lecture in our CURE the Epilepsies: Frontiers in Research seminar series.
Last night, we were reunited with our friends in New York for our Annual Reception to benefit epilepsy research. It was a great turnout, with many of our scientists in attendance. Thank you to Willie Geist, a terrific host, and all of our supporters and sponsors who made another evening in the Big Apple a success. See some pictures from the reception below!
This morning, our friends at Morning Joe welcomed Tracy Dixon-Salazar, PhD and I on the show, where Tracy shared the story of how deeply epilepsy has impacted her life – driving her to get a PhD in neurobiology with hopes of better understanding the seizures that plague her daughter Savannah. I was proud to address the progress CURE is making in research, and the endless possibilities for cures awaiting us with the right infusion of resources and attention.
And here’s some hopeful news for patients struggling with uncontrollable seizures–always such welcome new when new devices and treatments become available.