Great day for visitors at the CURE offices today! As our team is working feverishly to make our upcoming benefit in Chicago on May 19 the best yet, Dr. Steve White, our Research Director, came in from Utah or a few days of meetings. Always great to have him in person in Chicago.
Eileen Murray, the new Executive Director of the American Epilepsy Society stopped by to meet with us, meet our staff, and tour the CURE offices. It’s great to have her just a few blocks away!
Also, had the rare treat of getting together with long-time CURE friends and supporters Susan Schneider and Sherry Healey. They are part of the original crew of moms who helped get CURE on the map way back when, and have been loyal friends, supporters and boosters ever since.
Amazing to think back to the days when we were literally running this organization around my kitchen table!
Meanwhile, Tracy Dixon-Salazar is making her way back from the first of our new Seminar Series outside our country’s borders. She sent back these pictures from Montreal along with high praise for how well CURE grantee Dr. Jeff Noebels’ presentation was received. Thanks to host Massimo Avoli, MD, PhD, of Montreal Neurological Institute and Hospital at McGill University for hosting, and for ensuring that young researchers had plenty of access to Jeff.
After a two months hiatus away from my blog, it’s become harder and harder to get back into the swing of posting again. How and where do I start up again? There’s certainly been a lot to share with you the last few months, and I’m sorry to have missed the opportunity to do so.
Maybe it’s the interminably long and bitter winter here in Chicago. But, Wednesday morning the sun was shining on all of us—despite the bitter raw temperature outside!
I love this picture! Chicago Bears General Manager Phil Emery, Ventas Chairman and CEO Debra Cafaro and I took a few minutes after an amazing Corporate Kick-off Breakfast for our May 19th Benefit with James Taylor to share stories about our daughters—-each of whose lives has been impacted by epilepsy.
A room full of supporters heard Phil share his daughter’s personal story, talk about how for his daughter’s entire life he and his wife have been forced to “make decisions in darkness,” and shared his belief that CURE will ‘shed light’ on the answers we all so desperately seek.
This is going to be our best Chicago Benefit yet, and I hope you can join us! Tickets and sponsorships will be available on our website next week.
I hope you have all been well and that spring is just around the corner for all of us.
And….in case you missed it, please make sure you check out our latest round of research awards just announced earlier this week. Deepest thanks to all of you who help to make this critically important research happen!!!
I hope you are all in the midst of a wonderful holiday season. It’s always amazing to look back and realize how quickly the past year has flown by.
This was a fantastic year of ‘firsts’ for CURE:
- We launched our first “team” approach to battling one particularly devastating form of childhood epilepsy—-Infantile Spasms. Eight teams of investigators from across the country are working together to make a true difference in the lives of these people.
- We initiated our Seminar Series “CURE the Epilepsies: Frontiers in Research”. We’ve had fabulous receptions from our hosts in Denver, Houston and New York so far, and have received nothing but fantastic feedback from the students and researchers in attendance.
- We partnered for the first time with the Howard Hughes Medical Institute to support the next generation of epilepsy researchers. This program enables young medical students to work in epilepsy labs with established investigators. Applications are due January 11, 2014.
In addition, of course, all of our CURE-funded research continues in labs around the world, and with our last cycle, we are thrilled to have now supported 159 cutting-edge, transformative research projects since our inception.
Deadlines are fast approaching for the Pediatrics, SUDEP, Challenge and Acquired Epilepsies grants
- LOI’s are due January 15, 2014
- Full Applications are due May 1, 2014
And last, but not least, I want to thank you from all of us at CURE for your support this, and every, year. None of this could happen without you. Whether you are a donor, family member, researcher or clinician, you are what keeps this effort alive and growing, and we give thanks for your support and your belief in this cause every day.
Please, if you’re still making your 2013 charitable donations, remember CURE. Our incredible 2 for one matching grant extends through tomorrow…and if you’ve already donated; please help us spread the word by letting others know about this amazing opportunity. These donations will be critical to supporting even more of this incredibly valuable work in 2014!
We are all blessed that Savannah has moved to Chicago from sunny San Diego with her family and Yukon, her amazing service dog. They all bring such cheer and good will to our office and our other amazing CURE team members!
Though Yukon clearly loves the snow, I’m not so sure the rest of his family (those without fur coats) feel the same! It’s been a rather harsh Chicago welcome to the midwest for Tracy and her family, but we are thrilled they are all close by!
All of us at CURE send all of you our very warmest wishes at this time of year and always!
Despite all the extra personal demands we put on ourselves during this holiday season, the work of the CURE team and our researchers around the globe continues. I want to give a special shout-out to our friends Nico Moshe, MD and Aristea Galanopoulou, MD, PhD at the Albert Einstein College of Medicine in New York, for hosting Ed Boyden, PhD for the 3rd in our seminar series CURE the Epilepsies: Frontiers in Research. The lecture will take place this Friday, and we are certain it will be informative and motivational to all who attend.
We have an amazing opportunity these remaining weeks of 2013, thanks to the exceedingly generous donation of an anonymous friend and donor. She has agreed to match, dollar for dollar, everything we raise between now and December 31 up to $250,000.
What does this mean? It means, if we meet our goal, that this end-of-year campaign will support two of our largest, most prestigious research awards to continue the innovative work CURE has become so well known for.
And, what does that mean? It means we will have moved that much closer to finding the answers we so desperately seek. The answers that are critical to improving and saving lives.
This is a huge opportunity, You can check our progress toward this goal by clicking here.
I know that many of you give to CURE throughout the year, and we are so grateful to each and every one of you. For those of you who, like me, put off end-of-year donations until the bitter end–please remember this incredible opportunity to accelerate discoveries and progress toward the most meaningful goal of all—-cures for all of the epilepsies.
Glad to have dodged the DC storms only to return to frigid temperatures in Chicago! Here are a few more photos from AES 2013. CURE’s footprint was evident throughout so many of the scientific presentations — it validated all the hard work on the part of so many throughout the year. Thanks to all of you reading this, who, in one way or another, contributed to our efforts!